Friends of Shannon

Shannon's Party Pictures

2007-11-20T19:42:00.000-07:00

Here are some pictures from the party

Shannon Moroney Party pictures

Slides From Party

2007-11-16T21:49:00.000-07:00

Here is the slide show from the party.

It's Party Time

2007-11-16T07:43:00.000-07:00

View Larger Map

The party starts tonight at 6:30 PM at Mike and Lauri Curran's House. Here is a map if you need directions.

$50,000!

2007-11-12T13:31:00.000-07:00

Actually, we are now at $51,000 with exactly one week to go. We can't believe the generosity that so many people have shown. So if you know anyone that may still want to contribute (or even just wants to come to the party), please send them to this website and have them go to the invitation link. They can even pay online if they would like here.

If you don't have plans next Friday night why not donate some money and come to a great party with all of the friends of the Moroney family.

We have passed $40,000

2007-11-05T10:43:00.000-07:00

As of November 3rd, we have raised more than $40,000 ($3,100 online) for Shannon. We are less than two weeks to go and there is still time to donate if you haven't yet. If would like to donate, you can by clicking the ChipIn! button and do it right online. You can also mail a check. Click on the invitation on the right of the page and fill out the RSVP card and send it in.

Now at $33,000 and Growing Fast

2007-10-29T13:30:00.000-07:00

As of October 29th, we have now raised over $33,000 with a little more than two weeks to go until the big night. Note: We know most of you are not Buddhist but the quote above is pretty good. Thank you to all that have donated and to those that plan to; Thank you to you in advance for planning on doing so.

If you know someone that might be interested, please send them a link to this website and let them know that they can donate and even RSVP right here.

$22,000 and Growing!

2007-10-24T13:47:00.000-07:00

We are over $22,000 in donations between the online and mailed in donations. Thank you to all that have given so far. If you have not given so far and are considering it, please do. We know the final weeks push should put us close to our goal of $100,000. Check back and we will keep you up to date on our progress. We hope to see you on the November 16th!

Less than a Month to go

2007-10-21T19:57:00.001-07:00

We are less than a month away from this wonderful event. We are finalizing the event and so far Kathleen and Dan are unaware of the big night. Please, let's try and keep the night a SECRET!

If you have not sent in your RSVP, please do so by November 1st. If you can't make it, thank you in advance for making a donation to our wonderful friends - the Moroneys. Your support will make Shannon's life just that much easier.

Invitations are out!

2007-10-20T20:15:00.000-07:00

Invitations for this great event are out and you can get a copy of it here. Remember the night is November 16th. Please pass it along to anyone you know who may want to participate in this great event for wonderful friends.

What is Rett Syndrome?

2007-09-21T11:02:00.000-07:00

Rett Syndrome is a severe neurological disease that is the most physically disabling of the autism spectrum disorders. Caused by mutations in the gene MECP2, Rett Syndrome affects primarily girls, striking at random in early childhood and destroying speech, normal movement and functional hand use. Many with Rett Syndrome become wheelchair bound; those who walk display an abnormal, stiff-legged gait. Disordered breathing patterns, tremors, and seizures are common. Rett Syndrome is named after Dr. Andreas Rett, the Austrian pediatrician who first published scientific papers about this disorder.

Here are links to help better understand Rett Syndrome. www.irsa.org and Wikipedia

Friends Helping Friends

2007-09-16T14:31:00.000-07:00

September 14, 2007

Dear Friends,

If you know Dan & Kathleen Moroney, then you know what an amazing family they have…or maybe you don’t. Dan and Kathleen Moroney have three beautiful children, one of which is Shannon (age 7). She suffers from a rare neurodevelopmental disorder known as Rett Syndrome. This disease has left Shannon unable to speak or walk, and has affected her overall development, among other afflictions. Presently there is no cure for Rett Syndrome. Many of you may have received the invitation over the past several years to participate in the local Rett Syndrome Golf Tournament. This event has helped raise money to support international research toward a cure. Thank you so very much! Their close friends within the St. Thomas, St. Francis, Xavier and Brophy communities are now focusing our efforts on Shannon and her many needs.

Over the past few years we have been asked by many of you, “What can we do to help the Moroneys?” We have asked ourselves the same question many times. Because they would never use their situation involving Shannon to ask for help, sympathy or anything else, a number of us have gotten together to throw a “Surprise Party” to show them how much we care, admire and love them. In doing so, we have a goal of raising significant funds to buy a handicapped accessible van (cost is approximately $50,000), to help make their home more handicapped accessible and provide financial support for the many needs they encounter daily in raising a handicapped daughter.

Our committee is asking you to make a donation in whatever amount your heart and pocketbook allows. You will receive an invitation to celebrate with Shannon and her family on Friday, November 16, 2007. Invitations will be mailed shortly. Please do your best to send in your contribution and reply by November 1st, so that our team can determine the total gift amount to be given. Please make checks payable to the Friends of Shannon Moroney and mail to:

Friends of Shannon Moroney
c/o Mrs. Lynn Bush
2213 East Solano
Phoenix, AZ 85016

You may also donate with your credit card and watch our progress online at

www.friendsofshannon.com

Shannon and her family are so amazing. They will, no doubt, be overwhelmed by this event but how else can we show how much we love them. Thank you for your support. We look forward to celebrating with you on November 16th. If you need any additional information, please call Erin and Chris Tawney at (602) 957-0155 or by email.

Sincerely,

Shannon’s Team

Welcome

2007-09-10T21:58:00.000-07:00

Thanks for visiting the Friends of Shannon website. Please look around. I would love to get an email from you.