We are over $22,000 in donations between the online and mailed in donations. Thank you to all that have given so far. If you have not given so far and are considering it, please do. We know the final weeks push should put us close to our goal of $100,000. Check back and we will keep you up to date on our progress. We hope to see you on the November 16th!
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A Night of Friends Helping Friends. Let's Keep It A Surprise!
Friends of Shannon
Online Donating
Most people are sending donations by mail. Do you want to earn miles and help a great family? Do it here
What is Rett?
Rett Syndrome is a severe neurological disease that is the most physically disabling of the autism spectrum disorders. Caused by mutations in the gene MECP2, Rett Syndrome affects primarily girls, striking at random in early childhood and destroying speech, normal movement and functional hand use. Many with Rett Syndrome become wheelchair bound; those who walk display an abnormal, stiff-legged gait. Disordered breathing patterns, tremors, and seizures are common. Rett Syndrome is named after Dr. Andreas Rett, the Austrian pediatrician who first published scientific papers about this disorder.
Send Shannon an Email
Would you like to send Shannon and her family and email? They would love to hear from you. Please click here.